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Edna Culp from San Diego, CA is an Advance Practice Nurse/Clinical Nurse Specialist with focus in adult Gerontology, currently affiliated with University of California San Diego Health. Edna is married to Mark who was diagnosed with Parkinson’s Disease (PD). Diagnosis came in year 2000 when they had been married for 10 years. They celebrated their 30th wedding anniversary in June 2020, hence they had been living with this uninvited guest in their home for more than 20 years. Mark is now in the last stages of PD with Dementia and at times does not recognize her and their daughters, and is now requiring full care, 24-7 at home.
This has become a life of service and there is passion, joy and reward in sharing with others what was experienced and learned down this difficult road.
I have been a teacher all my professional life and as a past president of the Parkinson’s Association in San Diego I received lots of phone calls from newly diagnosed patients and was able to talk them through the shock of the new diagnosis and show them all of the resources that are available to them at our association.