My husband, Tony, was diagnosed with Parkinson’s in 2018 and passed 4 years later. In my efforts to become a good caregiver, I tried relentlessly to research information and find resources to help him. Due to the pandemic, as well as my lack of knowledge, I hit many dead ends, frustrating me to tears. It was a grueling time, especially the last two years of his life when his symptoms worsened. It was not until I became involved with the Parkinson’s Foundation that I learned all the things I WISH I had known when I was his caregiver. I still cry when I think of how I may have made his life easier and maybe even longer had I had access to this information. Now that I am widowed, I desperately want to help others who are currently experiencing similar frustrations in their quest to be the best possible caregiver.

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